Recently diagnosed for Long Covid

Posted by timeflight @timeflight, Jun 12, 2023

I have was notified that I had long covid 4 weeks ago. Symptoms are chest pain, issues with memory & brain fog. I had a cardiac episode thinking I was having a heart attack, this was when after 3 weeks after the episode I had long covid. I have my up days and down days, down days to the extent life isn't worth living like this. Has anyone else felt this way?

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Timeflight, Bless you. Please don't give up. I too have long Covid and just got a diagnosis in early May after having it last year. I had almost identical issues to yours after Covid. I got an echo/stress test done because my heart rated stayed in the 130's and I hurt in my chest....doing nothing it was still high. My heart was fine. This lasted about 2 months and then my heart rate came back down. Even walking to the mailbox was exhausting. I know you get it. The brain fog was terrible. I couldn't find my words. That got better as well. Make notes and post where you need to of reminders to yourself. I have never been so exhausted in my life as when I had Covid. I felt "lifeless" due to the fatigue. Rest is healing with Covid. Do a little something.....rest. Your body needs it. I am so sorry. I empathize. This virus is brutal to some folks like us....not so much to others. God Bless you. Praying for you.

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@covidstinks2023

Timeflight, Bless you. Please don't give up. I too have long Covid and just got a diagnosis in early May after having it last year. I had almost identical issues to yours after Covid. I got an echo/stress test done because my heart rated stayed in the 130's and I hurt in my chest....doing nothing it was still high. My heart was fine. This lasted about 2 months and then my heart rate came back down. Even walking to the mailbox was exhausting. I know you get it. The brain fog was terrible. I couldn't find my words. That got better as well. Make notes and post where you need to of reminders to yourself. I have never been so exhausted in my life as when I had Covid. I felt "lifeless" due to the fatigue. Rest is healing with Covid. Do a little something.....rest. Your body needs it. I am so sorry. I empathize. This virus is brutal to some folks like us....not so much to others. God Bless you. Praying for you.

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Covid stinks 2023 just to add to this I had a brain tumour removed 2.5 yrs ago which resulted in loss of smell and taste. I've had Covid twice where covid is the aggravated cause of the memory loss and fatigue but no one can answer that including the doctors. I've noticed in the last couple of days that I'm getting tired and want to sleep which is not normal for me so I'm guessing this too is part of long covid and when you don't have support it's even harder and that's when you start thinking the negative.

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@timeflight

Covid stinks 2023 just to add to this I had a brain tumour removed 2.5 yrs ago which resulted in loss of smell and taste. I've had Covid twice where covid is the aggravated cause of the memory loss and fatigue but no one can answer that including the doctors. I've noticed in the last couple of days that I'm getting tired and want to sleep which is not normal for me so I'm guessing this too is part of long covid and when you don't have support it's even harder and that's when you start thinking the negative.

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My heart hurts for you as you have been through so very much. I am so sorry you are going through this. 2x with Covid has got to be rough. I would think the symptoms would be multiplied with fatigue and other symptoms. I had to go to several doctors before I was diagnosed with long covid. Doctors are not that "up" on Covid just yet. Rest...do a little something....rest....eat well, stay hydrated...Please keep me posted on how you are progressing. I'm praying for you much.

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@covidstinks2023

My heart hurts for you as you have been through so very much. I am so sorry you are going through this. 2x with Covid has got to be rough. I would think the symptoms would be multiplied with fatigue and other symptoms. I had to go to several doctors before I was diagnosed with long covid. Doctors are not that "up" on Covid just yet. Rest...do a little something....rest....eat well, stay hydrated...Please keep me posted on how you are progressing. I'm praying for you much.

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Although every one is different along with the symptoms not having support as this is all new is so hard. When I advised my employer I had long covid they stood me down due to the chest pain. It got to the point where I have had to resign from my job cause my employer was non supportive. I'm so happy that I've made contact with someone who can relate and am able to bounce and hear your experiences and know how you deal with certain factors. I am in Australia and this is all so new but doctors need to catch up on this so they are able to help those who are going through this

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@covidstinks2023

My heart hurts for you as you have been through so very much. I am so sorry you are going through this. 2x with Covid has got to be rough. I would think the symptoms would be multiplied with fatigue and other symptoms. I had to go to several doctors before I was diagnosed with long covid. Doctors are not that "up" on Covid just yet. Rest...do a little something....rest....eat well, stay hydrated...Please keep me posted on how you are progressing. I'm praying for you much.

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I am a 54 yr old man and I have been through life changing experiences... and it's only life changing experiences that make you the person you are today and I'm sure going through this will make me a stronger man

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@timeflight

Although every one is different along with the symptoms not having support as this is all new is so hard. When I advised my employer I had long covid they stood me down due to the chest pain. It got to the point where I have had to resign from my job cause my employer was non supportive. I'm so happy that I've made contact with someone who can relate and am able to bounce and hear your experiences and know how you deal with certain factors. I am in Australia and this is all so new but doctors need to catch up on this so they are able to help those who are going through this

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Timeflight, I am so sorry about your job. Unless someone has walked in these shoes....they don't get it!
Covid causes chest pain in some....not in others.
Covid causes extreme fatigue in some...not in others.
Covid causes gut issues in some....not in others.
Covid causes brain fog in some...not in others.
Covid ramps up inflammation in some...not in others.
I could go on and on. I get it. There are many on here that are battling long Covid. You are right. This is new to doctors. We have to be patient as doctors are learning more and more about Covid. What a brutal disease. Take it a day at a time and rest if you need too and don't feel guilty about it. Stay hopeful.

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Sorry to hear, you're not alone. There are groups in Facebook and in communities that help with brain injury and long COVID recovery. Hope you feel better soon.

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@cybir12

Sorry to hear, you're not alone. There are groups in Facebook and in communities that help with brain injury and long COVID recovery. Hope you feel better soon.

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I'm sorry to hear that - it's interesting you bring up the brain injury cause just over 2.5 yrs ago I had a brain tumour removed. At the beginning I thought it was due to the removal of the tumour but when I was diagnosed with LC it still can't be confirmed it LC has aggravated the symptom or it's LC by itself. When I had the tumour removed I went to the brain injury rehab unit to see if anything had been affected. The nurses weren't expecting the results to be so good knowing what I had been through so with that result I believe it's LC alone that is causing this. I am heading back to the Brain Injury Rehab Unit as both my memory and speech has really been affected and I can definitely notice it in both symptoms

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With autommune diseases and long covid one goes through a grieving process. It feels as though parts of you are missing. The diseases also hit your emotional centers. Healing from the grief is done in stages, same as the slow healing is in steps, forward and back. I'm three months post-covid and the chest pains and fatigue are decreasing, not as fast as I would have liked. A support network that gives you time to heal is important.

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@kayabbott

With autommune diseases and long covid one goes through a grieving process. It feels as though parts of you are missing. The diseases also hit your emotional centers. Healing from the grief is done in stages, same as the slow healing is in steps, forward and back. I'm three months post-covid and the chest pains and fatigue are decreasing, not as fast as I would have liked. A support network that gives you time to heal is important.

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It's just gone past midnight here and I've woken up as if my brain has been wiped, emptiness, feels like there's nothing there. I believe it's LC at work

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