Thank you @maarten for your kind words. It is sad and comforting at the same time to know we are not alone and that our symptoms are not psychosomatic or caused by something as simple as “dehydration” or “anxiety”…
Some of my neurological/ musculoskeletal symptoms did resolve. Those were the internal vibrations and tremors in my left knee and transient numbness and tingling on my right side. I don’t think the remaining symptoms are getting worse. I would describe them as remaining the same or very very slowly improving while experiencing occasional setbacks. I must admit that despite my conscious efforts to block intrusive thoughts, I spend a good chunk of time fearing new muscle weakness or lack of coordination, or some other glaring neurological symptom marking disease progression. In the beginning, I felt confused about why my symptoms seemed to come in waves, and why I had good days and bad days. The consensus seems to be that these two steps forward and one step backward is the nature of long covid. I’ve come to accept those bad days as part of the recovery; the day before yesterday I felt pretty good, even got some light yard work done before having to take a 4-hour nap. Today I stayed in bed mostly while I struggled with muscle stiffness, aching, and myotonia in my calves.
I was never known for my optimism but from the extensive literature review I’ve been doing during my downtime I do believe a treatment -if not a cure- and a clinical recognition of the post covid neuromuscular phenomenon is closer than we think.
The challenge is to manage day to day and self advocate until then.
If it’s one thing I’ve learned from all this is how I feel today is not necessarily how I will feel for the rest of my life.
Hope this helps ❤️