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DiscussionAnyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)Comment receiving replies
Replies to "I had a similar experience. Cardiologist recommended open heart surgery. Having carefully read everything I could..."
@nanakpm, welcome to Mayo Clinic Connect! Thank you for sharing part of your story with the Hypertrophic Cardiomyopathy group. I'm so glad to hear that you are feeling better and more confident in Camzyos every day. You have six weeks experience. Others are only a day or so and some others are a few years into it. You will find that if you spend anytime reading on here, that you and the Camzyos group is pretty active, and very willing to share each other's experiences with the community. Every person is an individual and therefore each person will have a different experience. We are so unique! I had open heart surgery at Mayo in Rochester two plus years ago. Camzyos was not an option for me. I would say to anyone who may not respond to Camzyos not to fear open heart surgery as an option if the drug does not work for them. True...it's a BIG surgery. It's not something anyone who has to have it wants to have it. But you are already brave! You are trying a new drug without knowing how your body will react, or what side effects you may experience. That takes courage too. When were you diagnosed? Is your cardiologist familiar with HOCM/HCM?