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Essential thrombocythemia

Blood Cancers & Disorders | Last Active: Oct 16 9:36am | Replies (142)
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@wa34937

ET CALR, taking hydroxy for 3 years, 1000mg daily for last year. Platelets have risen from 5xx to high 700's, Hematologist is having me continue on 1000 but skip every other day. I haven't had a face to face with him to question, BUT, anyone heard of this therapy ? I get monthly blood draws.

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Replies to "ET CALR, taking hydroxy for 3 years, 1000mg daily for last year. Platelets have risen from..."
eileen11108 | @eileen11108 | Jun 15, 2023

If you have been taking 1000 mg Hydroxyurea daily for 3 years and your platelets are in high 700s it seems to me that HU might not be working well for you. Could you discuss this your hematologist.

I am currently taking 500 mg on Monday/Wednesday/Friday to see if my platelets slowly go down from 528 and. I can avoid headaches. I get my next CBC on July 7.

Best wishes, Eileen

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