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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: 3 hours ago | Replies (862)

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@pmm

Greetings! I am losing a lot of my energy as well but I attribute this to a combination of age and neuropathy…which limits my enthusiasm for walking.
My hem/onc doc says that I should not be having symptoms from MGUS so I’m assuming that my primary physiological nemesis is age (here insert expletive). I do have type 2 diabetes which is well controlled.
I try to eat healthy and do an exercise class for seniors and water aerobics. I am no longer taking those lovely, long walks, however. I miss that.
I think part of the challenge of dealing with chronic illness and an aging body is to find ways to stay engaged in life, and not throw up one’s hands and retreat to the couch. There are many, many people who complain about fatigue and neuropathy who also have MGUS. I believe that it effects each of us differently and you know your body better than any physician ever will. Make sure your doctor really hears you and what you are experiencing. Your doctor should rule out anything outside of the MG US that might be causing your fatigue. Sadly, I think that actually being heard by physicians is our biggest battle.
Let us know how you are doing.
Patty

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Replies to "Greetings! I am losing a lot of my energy as well but I attribute this to..."

You are so right I have seen a lot of doctors very few listen to what I'm saying if any. I too have very bad fatigue and neuropathy with MGUS. If you look at it closely you can only determine that MGUS is the cause and they continue to say it doesn't. I would say a hundred patients out rule anything a doctor has to say.