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Thanks...my office is very understanding and allowing me to meet virtually today. That "ok" alone helped me feel better. I will try some compression. And, yes - the clinic said they would call me if I needed phlebotomy prior to my next appointment which is week after next. They pulled samples last week that were not as bad as prior samples - but waiting on the Mayo lab results for final, final. They have not called me, I guess I'm assuming they have looked at the CBC and would have called if I needed it. I really think much of what is happening is just that darn fear of not knowing and letting the worst-case scenario fill my thoughts. Almost as soon as I receive the approval to not make that drive and sit in a meeting room - I felt instant relief. Today my negative demon is myself. I need to learn to listen to my body and brain - both with equal attention so it's not such a dramatic event putting me into tears.
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Anxiety is is the worst, isn’t it? We can get ourselves so worked up, especially with ‘what ifs’…
I’m relieved to hear you’re feeling better after making some changes in your schedule today. It gave you a sense of control for the moment. You’ve only recently found out about this diagnosis so it’s fresh and leaves you filled with uncertainty. It also has you feeling that your once totally dependable body has failed you somehow and that can leave you feeling out of control. Little by little you’ll reclaim your life as you learn that these awful days pass and tomorrow starts fresh. You’ll learn to read your body and to make adjustments. And some days you’ll wake up and think, “What fresh hell awaits today?” ☺️. That’s meant to be more of a joke. Did you ever watch Fraiser with Kelsey Grammer? He used to say that on the show. My husband and I laughingly use that phrase pretty often. Keeping a sense of humor helps with that positive mental attitude.
Another new member just signed on yesterday with possible PV. I think you two should meet… @rhiannon is just in the process of being diagnosed and sharing some of the similar symptoms with you.
Generally you will hear from your doctor if your blood tests warrant a phlebotomy but it wouldn’t hurt for you to give them a call for peace of mind. ☺️