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Caregivers need emotional support too
Caregivers | Last Active: Jun 16, 2023 | Replies (27)Comment receiving replies
@linric70 I am so sorry, your doctor isn’t helping you very much at all, is he? I think you have the right now to ask for a second opinion. You need doctor who is caring. Maybe see if you can get a referral to Palliative Care. They are very good and try to help you with managing side effects of medicines.
https://www.nia.nih.gov/health/what-are-palliative-care-and-hospice-care#:~:text=Patients%20in%20palliative%20care%20may,for%20them%20and%20their%20family. This link will give you more information about palliative care.
When you contacted the drug company, did you speak to someone in customer service? Or, did your doctor call on your behalf?
Replies to "@linric70 I am so sorry, your doctor isn’t helping you very much at all, is he?..."
Thank you for the information.
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I am communicating with the drug company myself. We are emailing each other. I’ve given them the doctors name.
We never talk to the doctor when they call, it’s always his nurse. She finally returned our call today about the amount of hot flashes and night sweats he is having and the only help she gave was “drink more water”! Needless to say he drinks more than 2 liters a day already, I don’t think he needs to be having to urinate more at night so he’ll get even less sleep!
We travel full time in an RV, we have full timed for 5 years. We get delivery of his pills by FedEx, usually at a Dollar General or
Walgreens, whoever receives FedEx deliveries. He gets his blood work don’t at Quest, in which town we are in. His next shot will be at a urologist in Spokane. We make all the arrangements.