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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Jun 22 2:38pm | Replies (736)
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@jaymaysea

My specialist cardologist analogized an alcohol ablation to a controlled heart attack, because it destroys heart muscle. He also advised that in some cases a pacemaker may be necessary after the procedure. But, said it was an option. My regular cardiologist advised against an alcohol ablation and said it was not imprecise enough. She thought I should go straight to surgery.

When I first came to the group my question was whether I should try Camzyos or go directly to open heart surgery. I decided to give it a try. It is not for everyone. This is my second day. I am praying it works for me.

There is lots of really good information on this site. I encourage you to take some time and read over the comments. I think you will find them helpful in making your decision.

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Replies to "My specialist cardologist analogized an alcohol ablation to a controlled heart attack, because it destroys heart..."
kelliw | @kelliw | Jun 13, 2023

I am so hopeful for you that you will have the same success that many of us have had! I noticed a difference within a couple of days. It feels so wonderful to have my life back and to be able to walk again, play golf, lawn bowl, and today even started water aerobics again! Please keep us posted how you are feeling! 🙂

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nanakpm | @nanakpm | Jun 14, 2023

I had a similar experience. Cardiologist recommended open heart surgery. Having carefully read everything I could find on camzyos, decided it made sense to try it first. Very glad so far. Started about 6 weeks ago and slowly feeling better. It’s amazing to walk without angina!

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nanakpm | @nanakpm | Jun 14, 2023

I had a similar experience. Cardiologist recommended open heart surgery. Having carefully read everything I could find on camzyos, decided it made sense to try it first. Very glad so far. And not worried about side effects because I am closely monitored. I’m
More worried about having to have surgery but feeling more confident in camzyos every day. Started about 6 weeks ago and slowly feeling better. It’s amazing to walk without angina!

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