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Anyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)Comment receiving replies
I was changed from Metropolol to Diltiazem before I started taking Camzyos and I had a terrible reaction to it. I was already struggling, but Diltiazem made it worse. I felt like I was going to die-it really made me struggle for breath. I couldn't walk from my car to my school office without getting really winded and having to stop a few times. Then the trek to my classroom seemed like a mile away. He switched me back to Metropolol and I was immediately better. I have also questioned continuing with Metropolol and Pantoprazole because they both come up as a drug interaction. I questioned my doctor and the specialty pharmacists and they all said it is fine. Is anyone else on either of those?
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My cardiologist switched me from Nexium to Pantoprazole in anticipation of taking Camzyos. When I gave the speciality pharmacist my list of meds, she said Pantoprazole was fine. If you put it into Drugs.Com it indicates a moderate interaction rather than major.
I am on currently on Diltiazem and my Dr. took me to overlap the two drugs for two weeks because he wants the Camzyos to build up in my system. I am taking the Camzyos in the morning and the Diltiazem in the evening. This is only my second day. So I have only overlapped the meds for one day. The experience of another member of our group was that the positive effects of Camzyos were felt after only a few days and they were told to stop a med similar to Diltiazem 2 weeks before they started Camzyos. So I am being mindful that I may not need to take both for two weeks.
I think cardiologist and pharmacist are still figuring the interactions out and while you shouldn’t ignore their advice you have to listen to your body and let them know what is working and what is not.
I really appreciate you bringing Pantoprazole to my attention. I had assumed it was fine. While Bristol Myers Squibb has a list of meds that are counter indicated, the DrugRX site identifies additional meds that are not on the BMS list of meds that are not recommended.
Trust but verify!