← Return to Idiopathic Small Fiber Neuropathy - chest pressure/tighteness

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@kath1492

I’ve often wondered if I have Stiff Person Syndrome. None of my doctors had heard of that either, even though Celine Dion has it. When I heard that she had it I almost fell over! I also foolishly thought that then, maybe, my doctors would look into it and try to help me. No such luck. I think I’m finally giving up on doctors, except for epidurals in my lower back. My last one has been very effective so far, fingers crossed. Big hugs to all of my fellow PN sufferers!! It’s not an easy road, but together we can get through it. Being in nature is definitely therapeutic. ❤️

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Replies to "I’ve often wondered if I have Stiff Person Syndrome. None of my doctors had heard of..."

To kath1492
I, also, believe I have SPS!
Agree… docs don’t know what it is as they will not discuss the possibility. Am going to ask for a GAD antibody test as I have had every other testing and meds that have proved useless! When your abdominal stiffness comes on does it affect your gait and have difficulty in catching your breath? Thanks for your input! Nance