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DiscussionLiving with epilepsy - Introduce yourself & meet others
Epilepsy & Seizures | Last Active: Jun 29, 2023 | Replies (462)Comment receiving replies
Replies to "Hello @1775house and welcome!!! It is good to know you have a VNS implant that it..."
I am not sure 25 years ago I would have done it ---- you know I was just about to erase that statement but I did not why? because I would have if my doctors had suggested it - I was so depressed because I could no longer drive I had 3 kids under the age of 14 when it started, PTA was over going to get groceries when I needed them had to wait to ask for someone else = I think most everyone gets the picture. The psychiatrists who thought VNS was the new treatment were trying to get the neurologists to approve it for me over at Stanford University Hospital in California to treat but they wouldn't they would even for my epilepsy. It took them 18 years actually to (9 more years after the psychiatrists stopped trying) decide that the VNS might be the best thing for me. Except for the beginning when I had grand mal seizure I have had generalize seizures. So any one who has had a VNS from a long time ago I am going to guess you might be among the beginning of the recipients the VNS implants therefore the both the first neurosurgeons who implanted them plus the first devices - not the very first but before they were known let's face it even outside the epilepsy neurologist they are barely known 🙂 I do not have have really complicated or a severe case of epilepsy - but I have come up a whole lot of complicated minor issues only because because of the years that go by and that I have just like at the Mayo some great doctors. Long winded hope it helps and I'm glad I joined this group