Connect
← Return to Caregivers need emotional support too
Discussion
Caregivers need emotional support too
Caregivers | Last Active: Jun 16, 2023 | Replies (27)Comment receiving replies
Our doctor never offered any help - no social worker, no information on how much my husbands meds would cost ($14,000 a month) and not even a word about getting a grant to cover the cost of the pills. He only said if you don’t take these pills & shot you’ll be dead in 6 months with bone cancer and it will be a horrible death! I’m so over trying to find help and information. We’re both tired and the side effects of the meds is overwhelming to him. I’ve contacted the drug company and all they are concerned with is that they need to report it to the FDA! My husband is 75 with stage 4 prostate cancer.
Replies to "Our doctor never offered any help - no social worker, no information on how much my..."
Hello linric70,
I'm so sorry to hear your doctor is such a J****!! How dare a professional talk to a patient like this! For whatever it's worth l think you should report the guy! One oncologist here, supposed to be a super woman in the field, told my husband too he had a few months to a year at best. I can still see her face, it looked like she even enjoyed it a little!! Believing herself to have that kind of power. Luckily we could change to another oncologist. I mean, we know what we are dealing with here and it's bad enough as it is but as my breast surgeon said - NOBODY KNOWS with absolute certainty when a person is going to die and that he stopped counting the patients who were still around five years later.
I wish both of you love and perseverance 🙏
One of the resources for prostate cancer is The Assistance Fund. I’m so sorry your doctor is not more supportive. The first doctor my husband saw (urologist) was not supportive. I’m so glad he found another doctor. My husband feels that his urologist, oncologist and radiologist were extremely supportive. Yes. All the treatments have side effects. His ongoing hormone shots and the pills do have side effects and are our biggest expense. Keep a list of possible assistance sources. Keep checking. Many sources help until their funding runs out.
(My husband has metastasized prostate cancer. We are hopeful.
Connect
@linric70 I am so sorry, your doctor isn’t helping you very much at all, is he? I think you have the right now to ask for a second opinion. You need doctor who is caring. Maybe see if you can get a referral to Palliative Care. They are very good and try to help you with managing side effects of medicines.
https://www.nia.nih.gov/health/what-are-palliative-care-and-hospice-care#:~:text=Patients%20in%20palliative%20care%20may,for%20them%20and%20their%20family. This link will give you more information about palliative care.
When you contacted the drug company, did you speak to someone in customer service? Or, did your doctor call on your behalf?