← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

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@jaymaysea

Good Morning HCM Family, I took my first Camzyos pill this morning. So begins my journey to a better quality of life.

I am currently on Diltiazem (240mg) which is one of the drugs that is usually not recommended to be taken with Camzyos because it increases the risk of heart failure. My Dr. wants me to continue taking the Diltiazem with the Camzyos for 14 days. Has anyone else had a similar direction from their Dr. regarding a calcium channel blocker? I am the “trust by verify” member of the group.

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Replies to "Good Morning HCM Family, I took my first Camzyos pill this morning. So begins my journey..."

While we wait for others to chime in on their experience and if they were taking Diltiazem at the same time, I just wanted to say I am thinking of you and hoping the best for you getting back your life! When do you see your doctor again?

I had to get off my calcium blocker - Verapamil - two weeks before starting Camzyos.

I was changed from Metropolol to Diltiazem before I started taking Camzyos and I had a terrible reaction to it. I was already struggling, but Diltiazem made it worse. I felt like I was going to die-it really made me struggle for breath. I couldn't walk from my car to my school office without getting really winded and having to stop a few times. Then the trek to my classroom seemed like a mile away. He switched me back to Metropolol and I was immediately better. I have also questioned continuing with Metropolol and Pantoprazole because they both come up as a drug interaction. I questioned my doctor and the specialty pharmacists and they all said it is fine. Is anyone else on either of those?