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← Return to MGUS with bone pain?
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Hi Frances, any day we’re not pushing daisies up from the under side is a gift. But I also know the sense of foreboding that can hover in the background while we try to remain all cheery and positive. That takes Herculean strength some days, doesn’t it?
We have quite a few members with MM so if it does turn out that this is what you’re dealing with you’ll have a legion of friends who can help with more information, encouragement and hope to share with you.
My advice right now is to not visit with Dr Google because sometimes looking online can send you to areas that aren’t even applicable to you and they cause more stress. So let’s wait and see what your hematologist has to say. I hope it’s a favorable meeting for you and that you ‘click’ with your new doctor.
Before you head out the door, make a little list of questions you might want to ask.
I found a Connect discussion that might be helpful for you. It’s called: Your tips on How to Get Off to a Good Start with a New Specialist https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/
Good luck and let me know what you find out, ok? ☺️
Replies to "Hi Frances, any day we’re not pushing daisies up from the under side is a gift...."
in reply to @loribmt I have not checked out the sites you recommended and will go to my appointment today "blind." However, I have seen several posts about bone pain, and I have been having similar symptoms. I will discuss this with the doctor later today. My father died from MM and therefore, my anxiety about this appointment is heightened. I am still maintaining my positive attitude, figuring that any day above the ground is a good one, albeit the pain which is calmed with medication. I have survived many difficulties in this sorry life of mine, and I will not let anything destroy my gratitude, sense of humanity and things of that nature. And, while my mother always told me to "pull yourself up by your bootstraps", if I have a meltdown following today's appointment, so be it.
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in reply to @loribmt Thank you. I have stayed off of Google for obvious reasons. However, in texting with my former rheumatologist the other day, she mentioned to me that she had thought of another autoimmune condition associated with the worsening of my Raynauds Syndrome, but did not want to discuss this via text. albeit she was very concerned. She has never said this to me before, and she also knows I will be seeing the hematologist this week. While my curiosity was heightened, I forced myself not to go searching, even though I usually just look at the NIH or Cleveland Clinic site. In all fairness, I am a trainwreck. However, I am meeting a long time friend today who I have not seen in 10 years, and the loaf of bread I baked for her this morning came out perfect, as did the card I made. Interestingly enough, this rustic round I made came out in the shape of a heart.