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Essential Thrombocythemia: Looking for information and support

Blood Cancers & Disorders | Last Active: Nov 4 11:06am | Replies (597)
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@nohrt4me

Re ferritin levels. Is elevated ferritin a common and related to ET? I am not being tested for it, but the discussion drew my attention because I developed a benign goiter a couple of years ago. Came out of the blue and family doc has dismissed it as nothing to worry about after doing a needle biopsy yearly ultrasound and initial thyroid function tests. Not everything is related to ET, but wondering if it's worthwhile pushing for further tests.

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Replies to "Re ferritin levels. Is elevated ferritin a common and related to ET? I am not being..."
Rhonda Gregory | @rjgregory440 | Jun 12, 2023

Interesting...goiters are usually caused by lack of iodine or thyroid issues. I'm surprised that your family practitioner did not prescribe some kind of treatment. The thyroid controls hormone production and can cause all sorts of problems.

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eileen11108 | @eileen11108 | Jun 14, 2023

Did your family doctor do the needle biopsy?

I also had a benign goiter and non malignant nodules. I see an excellent endocrinologist. I do have thyroid labs done also, Each time I go he personally does an ultrasound and compares it to the previous ultrasound. Last time he said to come back in two years. When I see him next I will bring up the subject of ET JAK2 and Hydroxyurea.
Eileen

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