← Return to Diagnosed with HOCM last year. May be time for surgery

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@colleenyoung

Hi @barbararickard
Welcome to Connect. I’m glad you found us. You are definitely not alone. We have a great group of people here who also have hypertrophic cardiomyopathy (HCM or HCOM).

Let me introduce you to @cynaburst @lynnkay1956 @PatMattos @Sensation @ronaldpetrovich @rmcmillan @lepadelford @catiemorris @wandikarnadi @rosebud @fishinglady to name a few. Many of them (if not all) have had surgery, some recently and some a while ago.

Cynthia, Ron, Lynn, Pat and company can you share how surgery went for you and help answer some of @barbararickard‘s questions?

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Replies to "Hi @barbararickard Welcome to Connect. I'm glad you found us. You are definitely not alone. We..."

I was diagnosed with HCM in 2014 after having sever fatigue and shortness of breath in 2013. The thickness of the muscle was enough to require surgery at that time, however, a trip to Duke University Hospital with one of the cardiologist told me that if I wanted they would do the surgery but it would take a year to heal and that after a few years I would feel bad again due to the related hormones released with this condition. Tomorrow, Monday the 27th and 28th I am having another echo and stress/with contrast done and will see the doctor in april. After reading some info on here it sounds as though I have not been well informed. My cardio is a great doctor but not a specialist in this disease)HMC) Should I request another doctor(specialist) about surgery. I am currently taking Trope at this time but still experiencing a lot of shortness of breath and a lot of fatigue. I should also mention that I am turning sixty in aug., and have fibromyalgia, also. Frustrated…

It definitely sounds like you could use a second opinion from a HCM specialist. There is one at Duke. I believe his name is Dr. Wang. If I were you I would make an appt. to see him.

Thank you will ask my cardiologist about him

I just did a little research and I believe there are two docs I have heard of at Duke with knowledge of HCM:
James Daubert and Andrew Wang.

Hi @pj57,
I add my welcome to @cynaburst‘s. I hope you can get an appointment with an HCM specialist at Duke and close to home. If you’d like to consider a second opinion at Mayo Clinic, here is the contact information http://mayocl.in/1mtmR63. Please let us know how it goes.

If you’d also like to share about fibromyalgia with Connect members, feel free to join this group “fibromyalgia pain” http://mayocl.in/2hgUGcv

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