@bigheartedwarrior, you have come here for the right reasons; to share your story and to gather information from others who have walked the same path as you. You will find others who have and will continue to encourage you and I hope you are able to discern their kindness and caring about you and what you are experiencing. I understand how frustrated you must be. Who would not be after the crazy sideways trip you have been on? You sound like a strong person, but the weight of your setbacks and fear of the unknown seems to be raising your anxiety and causing you to lose trust in the medical community. The Mayo Clinic is the top hospital in the world for the most complicated of cases. Not every situation is clear, cut and dry, and it seems like you have been going thru this for a long time. But it also sounds like a plan to get you better is in place now...have you considered what would happen to you if you cancelled this appointment? It may be in your best interests to proceed with the appointment rather than go it alone without the Mayo. Does that make sense? Feeling hopeless is the lowest of all emotions. There is always hope as long as you are alive, in my opinion. Do not give up. You have come this far and you are so blessed to be able to be seen by the finest cardiology team in the world.
So many people struggle to even get an appointment at the Mayo Clinic. When are you scheduled? Do you have a support person or persons that you can talk to? Mayo Connect is here for you...others with your same condition who have gone before you and offer wisdom and encouragement.

I suggest you don’t cancel.