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Idiopathic Small Fiber Neuropathy - chest pressure/tighteness

Neuropathy | Last Active: Oct 22, 2023 | Replies (45)
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@mafalda

I have the exact same symptom as you describe, the pressure band in my chest! and I almost feel I should not mention it anymore to the doctors, because any and all the doctors I mention this, don't understand or relay to it! I wish they will read these blogs! I have come to the conclusion that same as my legs and hands are becoming stiff, my muscles in my torso are also getting stiff. which brings me to question my diagnostic of CIDP????? BTW, my face around my lips is also num.

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Replies to "I have the exact same symptom as you describe, the pressure band in my chest! and..."
kath1492 | @kath1492 | Jun 13, 2023

I’ve often wondered if I have Stiff Person Syndrome. None of my doctors had heard of that either, even though Celine Dion has it. When I heard that she had it I almost fell over! I also foolishly thought that then, maybe, my doctors would look into it and try to help me. No such luck. I think I’m finally giving up on doctors, except for epidurals in my lower back. My last one has been very effective so far, fingers crossed. Big hugs to all of my fellow PN sufferers!! It’s not an easy road, but together we can get through it. Being in nature is definitely therapeutic. ❤️

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ginette | @ginette | Jun 18, 2023

Sclerodermia?

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