← Return to Inactivity with pulmonary fibrosis

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Inactivity with pulmonary fibrosis

Lung Health | Last Active: Jun 11, 2023 | Replies (20)

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@ch47

My heart goes out to you for all the illness and anxiety have had this past year, but great that you have pulled through all…
I agree, the waiting is the worst. We had to wait 6 months to see a great pulmonologist and get a diagnosis. Then almost a month of battle to get the medication. Which takes 3 months to start working (?) and in the mean time, you wait for potential nasty side effects.
However, sounds like you have a positive attitude (we try!) and as I understand, that will go a long way with all of your potential health issues. Maybe none!
Ps, IPF testing revealed an aneurysm that is pretty nasty-will be having third ct shortly to see when surgery is necessary, sooner rather than later… I guess IPF could be considered a life saver?
Best to you and please let us all know how you are doing after you see your new specialist.

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Replies to "My heart goes out to you for all the illness and anxiety have had this past..."

Thank you so much. Yes I will post when I get any news. Trying to keep the faith and keep active!