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@jola13

does anyone have the following rare blood cancer essential thrombocythaemia - Ive just been diagnosed

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Replies to "does anyone have the following rare blood cancer essential thrombocythaemia - Ive just been diagnosed"

Hi @jola13, there are several members living with essential thrombocythemia (ET) here like @shenriq @jbgeorge @jackt00 @bonnieshaffer @remo1110 and many others who have this blood condition.

In addition to this discussion, you can use the Search bar to find several other topics related to ET.

Jola, have been tested for genetic mutations that may help determine treatment options? What treatment plan has been recommended for you?

I was diagnosed with Essential Thrombocythemia, JAK2 mutation, earlier this year. My hematologist (who was also my oncologist after breast cancer) is adamant that ET is not cancer. She says it is a blood disorder, and the widely used cancer label is a misnomer.