Esophageal Cancer: How do I get started with Mayo?

Posted by dtaylor75 @dtaylor75, Jun 25, 2022

How do I get my wife into Mayo to see someone for esophagus cancer in Rochester MN? I know make an appointment but who do I make the appointment with, what type of doctor or which doctor do we need to see?Thanks.

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@jmp1514

This morning I thought it might be a good (proactive) idea to find a local oncologist who will coordinate with Mayo. What i found out was our local oncologists are seemingly very territorial and not interested or willing to this type of plan.

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Or dear. I'm sorry to hear about that. When you have your video appointment with Mayo on Wednesday, you might ask them about working with your local oncologists. They may have colleagues in your area that they know and work well with.

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@jmp1514

This morning I thought it might be a good (proactive) idea to find a local oncologist who will coordinate with Mayo. What i found out was our local oncologists are seemingly very territorial and not interested or willing to this type of plan.

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Yeah that’s tough. Another reason we made Mayo work logistically. We ran into that with the first doctor we saw and we’re rudely just told “that’s not how it works” you can’t get your instructions from Mayo then just expect us to do it here. When I tried to explain I was looking for a local team that would partner with Mayo so we could weigh the option plans together I was again met with resistance and very much a “it’s our way or the highway” mentality. The nurse was outright rude about it and acted like we were the biggest inconvenience she had ever experienced. This was at the University of Nebraska Medical Center Buffet Cancer Center in Omaha NE by “Marie”, the head nurse assigned to Dr. Jean Grem. Warning for anyone reading this who happens to be in Omaha. I think if we would have stayed there for our cancer care my wife would either already be dead or not have a shot at living cancer free, ever. If your local provider is already giving you resistance and you haven’t even started care that should be a giant red flag as to how they would treat you if you were under their care. Avoid at all costs.

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@dtaylor75

Yeah that’s tough. Another reason we made Mayo work logistically. We ran into that with the first doctor we saw and we’re rudely just told “that’s not how it works” you can’t get your instructions from Mayo then just expect us to do it here. When I tried to explain I was looking for a local team that would partner with Mayo so we could weigh the option plans together I was again met with resistance and very much a “it’s our way or the highway” mentality. The nurse was outright rude about it and acted like we were the biggest inconvenience she had ever experienced. This was at the University of Nebraska Medical Center Buffet Cancer Center in Omaha NE by “Marie”, the head nurse assigned to Dr. Jean Grem. Warning for anyone reading this who happens to be in Omaha. I think if we would have stayed there for our cancer care my wife would either already be dead or not have a shot at living cancer free, ever. If your local provider is already giving you resistance and you haven’t even started care that should be a giant red flag as to how they would treat you if you were under their care. Avoid at all costs.

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My husband has his schedule of appointments in Rochester. February 9 th can’t come soon enough!

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As I recall after we had the diagnosis of esophageal cancer we looked up gastro oncology general number on the website. The staff was wonderful about getting us the oncology appointment and the thoracic surgeon appointments coordinated.

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