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Platelet infusions

Blood Cancers & Disorders | Last Active: Jul 1, 2023 | Replies (28)

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@crhilston

Thank you for your comments. My appointment was about 4 hours long, including another platelets infusion. The major outcome, though, was a very frank discussion of what the future looks like. Bottom line is to start getting hospice services in my apartment for as long as possible and to avoid the hospital at all costs. In response to my question, "how long"? the doctor said three to six months.
Is there a group for those of us who are "counting the days"?

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Replies to "Thank you for your comments. My appointment was about 4 hours long, including another platelets infusion...."

Yesterday was a defining moment for you. Having been diagnosed with AML myself, I was concerned this might be the discussion you’d be having with your doctor. I’m very sad that this was the case. It’s so unfair to have lived such a full and healthy life to the wonderful age of 92 and receive this news.

Honestly, even though the outcome of your appointment wasn’t filled with a long future, you have some comfort of time. When I was diagnosed it was so late in the game that I literally had no time and would have passed within a day if not for emergency treatment. But I was a bit younger (65) so it was an option for me with aggressive chemo and a bone marrow transplant. However, I would have had no opportunity for goodbyes, ‘getting my affairs in order’, sharing my stories or anything else because I ran out of time.

In a sense, we’re all basically counting our days and we all need the support of each other no matter where we are in our journey. There aren’t any specific groups in here for Counting the Days…but… you could start a discussion!

Now’s your chance! You have an open platform and I guarantee that you won’t be alone. We’re all here to encourage and help you along this next leg of your journey.

You can start a discussion in this group. Here’s a link to the page. https://connect.mayoclinic.org/group/blood-cancers-disorders/
You’ll see a spot under the heading where is says, Start a new discussion.
What do you think?

I see my cancer clinic again this week, however, today I was admitted to hospice.