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I am curious: What symptoms did everyone have in the beginning for PV?

Blood Cancers & Disorders | Last Active: Feb 1 9:59pm | Replies (48)
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@jjdownes01

Started with horrible itching after bathing. Elevated hematocrit (57) led to biopsy to confirm. Now, 2 years later, itching has abated, but fatigue every day and lightheadedness. Treated for skin cancer, taking 1000 hydroxyurea and fighting thru. I am soon to be 79.
Good luck, it takes some getting used to and a positive thinking hematologist.
jjd

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Replies to "Started with horrible itching after bathing. Elevated hematocrit (57) led to biopsy to confirm. Now, 2..."
samlupowitz | @samlupowitz | Jun 9, 2023

Hi. Same here. Itching is gone, but the fatigue is here. Hemoglobin level is +/- 11, so not low enough to explain the high degree of fatigue, but yet the fatigue is ever present.

And yes, my itching was major after emerging from a hot bath. Had to swallow a bunch of antihistamines to get rid of. Thank God that phase eventually passed.

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