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MGUS with bone pain?

Blood Cancers & Disorders | Last Active: Feb 10 12:28pm | Replies (36)

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@loribmt

Aw, Nathan, that sounds just awful. I’m so sorry you’re having this much pain on a daily basis. You definitely need to have this explored further to find answers and to get you off that morphine.

‘Patchy bone’s? What the heck does that mean anyway? Were there areas that looked like ‘holes’ in your bones? Edema? Dense areas? Having anything untoward showing up on imagining warrants a followup! I’d be on that with the tenacity of a honey badger! Don’t give up!

I’m not implying that you have multiple myeloma but the rib and spine pain you’re experiencing sounds very much like symptoms many people with Multiple Myeloma endure.

You’ll get tired of me tossing out information for you but again, it’s a way to help you advocate for yourself when you contact your doctor. Here’s some information on Multiple Myeloma. Again, not saying this is what you have but the symptoms are very parallel after your diagnosis with MGUS.
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https://www.healthline.com/health/cancer/multiple-myeloma-bone-lesions-damage-pain

Please don’t let another day go by without making an appt with your GP to get a new referral. You need to feel that you have hope in your life so that you can start healing and feeling better again. What do you think? ☺️

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Replies to "Aw, Nathan, that sounds just awful. I’m so sorry you’re having this much pain on a..."

Hello Nathan, I’m glad you found our group. I had the same reaction as Lori when I read “just MGUS.“.
Finding the right specialist is essential. Your oncologist/hematologist should be someone experienced in the treatment of multiple myeloma. Hopefully you will never have multiple myeloma, but that’s the guy or gal who will ensure that if your numbers change drastically you are treated properly. My numbers have been relatively stable, although they are increasing as time goes by. I’m seen every three months and have blood work done and they do imaging once a year. You need a specialist to listen to you, answer all your questions, and stay current on the rapidly changing information about our a little corner of blood disorder land.
Again welcome. Get thee to a good specialist!

Patty