Welcome to Connect, @nathangolden. I’m going to echo @deborahjb by encouraging you to advocate for yourself. This may mean getting a second opinion because no one should be dealing with this level of bone pain without a definable cause.

Your hematologist is pretty dismissive with the diagnosis of ‘only’ MGUS. While it’s not aggressive it is a condition that requires monitoring to keep tabs on any potential changes. It’s generally a very slowly developing blood condition and in some people it doesn’t change. But it can progress to smoldering multiple myeloma or multiple myeloma, which can have side effects of bone pain. So it warrants finding out exactly what’s going on in your bone marrow. Are you on a watchful waiting schedule with your hematologist? Is this the doctor who is proscribing the morphine for you?

Here are a couple links with information on MGUS. It’s not meant to alarm you but knowledge is power.
https://www.healthline.com/health/how-serious-is-mgus
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https://www.mayoclinic.org/diseases-conditions/mgus/symptoms-causes/syc-20352362

While some of the informational articles suggest that most people don’t experience symptoms with MGUS, you can see in our forum that many of our members have varying symptoms with their condition.

I found some relevant discussions in the forum:
Anyone with MGUS, do you have joint pain? (Posted by @cass52)
https://connect.mayoclinic.org/discussion/mgus-3/

https://connect.mayoclinic.org/comment/825884/ (with
@lynne756 describing how she feels her joint and bone pain might be related to her MGUS diagnosis)
Here’s a link to that entire discussion group conversation
~Does anyone else have MGUS?
https://connect.mayoclinic.org/discussion/mgus-diagnosis/

How long ago was your diagnosis for MGUS? Did you have a bone marrow biopsy or any imagining done?

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