← Return to MGUS with bone pain?

Discussion

MGUS with bone pain?

Blood Cancers & Disorders | Last Active: Feb 10 12:28pm | Replies (36)

Comment receiving replies
@loribmt

Welcome to Connect, @nathangolden. I’m going to echo @deborahjb by encouraging you to advocate for yourself. This may mean getting a second opinion because no one should be dealing with this level of bone pain without a definable cause.

Your hematologist is pretty dismissive with the diagnosis of ‘only’ MGUS. While it’s not aggressive it is a condition that requires monitoring to keep tabs on any potential changes. It’s generally a very slowly developing blood condition and in some people it doesn’t change. But it can progress to smoldering multiple myeloma or multiple myeloma, which can have side effects of bone pain. So it warrants finding out exactly what’s going on in your bone marrow. Are you on a watchful waiting schedule with your hematologist? Is this the doctor who is proscribing the morphine for you?

Here are a couple links with information on MGUS. It’s not meant to alarm you but knowledge is power.
https://www.healthline.com/health/how-serious-is-mgus
~~
https://www.mayoclinic.org/diseases-conditions/mgus/symptoms-causes/syc-20352362
While some of the informational articles suggest that most people don’t experience symptoms with MGUS, you can see in our forum that many of our members have varying symptoms with their condition.

I found some relevant discussions in the forum:
Anyone with MGUS, do you have joint pain? (Posted by @cass52)
https://connect.mayoclinic.org/discussion/mgus-3/
https://connect.mayoclinic.org/comment/825884/ (with
@lynne756 describing how she feels her joint and bone pain might be related to her MGUS diagnosis)
Here’s a link to that entire discussion group conversation
~Does anyone else have MGUS?
https://connect.mayoclinic.org/discussion/mgus-diagnosis/
How long ago was your diagnosis for MGUS? Did you have a bone marrow biopsy or any imagining done?

Jump to this post


Replies to "Welcome to Connect, @nathangolden. I’m going to echo @deborahjb by encouraging you to advocate for yourself...."

I only wish I had second opinion the va won't pay for second opinions so I'm stuck with the same doctors with the same opinions that MGUS is not causing all my systems but they have no idea what is it's like being stuck on a one way highway

in reply to @lorib Thank you for all of this information. I see a hematologist on Wednesday this week to discuss my lab tests which show vast irregularities in reference to the light chains. I have a terrible sense of foreboding because my PCP has already mentioned to me that he and the hematologist suspected that I have multiple myeloma, but my PCP said he really did not understand the entirety of the lab results, thus the referral. I am trying my best to remain positive, but admit that I am a bit frightened by the mere fact that my PCP mentioned the multiple myeloma to me, and I am already suffering from a multitude of other health conditions. However, I still tell myself everyday how grateful I am to be above the ground, because today, many are not. Thank you