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Inactivity with pulmonary fibrosis

Lung Health | Last Active: Jun 11, 2023 | Replies (20)

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@yvonne55

God bless all of you fighting this IPF. I'm not sure after a year now, what I'm fighting. I had pneumonia twice last summer. The second round was accompanied by sepsis. In January I was diagnosed as having aspiration pneumonia causing ARDS. 58 years old and healed well. Another 2 ct scans later and the pulmonologist said things look "good". BUT is sending me to yet another specialist to have a closer look at my lung scarring. I know little about this scarring business, and he doesnt want to say much until this new specialist looks at my scans. In the meantime, I am active, have excellent 02 saturation levels, no cough whatsoever, no fatigue, no unexplained weight loss, a good appetite, no muscle or joint pain. I thought my nightmare was over. Or is a new one about to begin? The scarring between January and April's scans show no scar growth. I've been waiting on this new specialist since May 10. Appt isnt till June 28. Its frightening to me being in limbo so I thought I'd ask for anyones knowledge. Thank you so much. 🙂

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Replies to "God bless all of you fighting this IPF. I'm not sure after a year now, what..."

My heart goes out to you for all the illness and anxiety have had this past year, but great that you have pulled through all…
I agree, the waiting is the worst. We had to wait 6 months to see a great pulmonologist and get a diagnosis. Then almost a month of battle to get the medication. Which takes 3 months to start working (?) and in the mean time, you wait for potential nasty side effects.
However, sounds like you have a positive attitude (we try!) and as I understand, that will go a long way with all of your potential health issues. Maybe none!
Ps, IPF testing revealed an aneurysm that is pretty nasty-will be having third ct shortly to see when surgery is necessary, sooner rather than later… I guess IPF could be considered a life saver?
Best to you and please let us all know how you are doing after you see your new specialist.