← Return to Essential Thrombocythemia: Looking for information and support

Discussion
Comment receiving replies
@jbgeorge

Hi Jackt00

My name is Jerry and in 1989 while in the army got a severe form of ITP while I was at AIT in Augusta Georgia. They know so much more today about that disease than back then. I went through the bone marrow biopsy which was not any fun. 20% chance to live red cross flew my family there on emergency. Anyways I finally responded to very high doses of prednisone
Went to Germany preparing for desert Storm I got the disease again this time even worse. The prednisone made me crazy I started having really bad hallucinations and was losing my mind. They did an emergency splenectomy on me when they finally got my platelets up high enough. Red cross again but I wanted to die. I still to this day suffer from mental illness. It's been a lonely road about this disease until I started finding these groups I've learned so much about the disease. I did a lot of research on prednisone and it does cause schizophrenic like episodes at very high doses. I developed a mental illness out of all of that and that's why I still have it but it started in there. Anyways I know I'm going on and on I just wanted to share my experience.

Jump to this post


Replies to "Hi Jackt00 My name is Jerry and in 1989 while in the army got a severe..."

Jerry, first I’d like to say thank you for your service. I am so sorry you are still going through that. You are right about the new treatments they have today. I don’t think they use prednisone for that particular condition anymore, but I am not a doctor. I wish you well and hope you continue to get better. Jackt00