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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 1 day ago | Replies (6026)

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@james19113

t the moment, I have such basic questions to ask my neurologist, such as: Is my PN a large or a small fiber PN? Is it progressive or stable? Since it's idiopathic, is there any point in trying to learn its cause? Those sorts of basic questions.
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Then I also want to ask if I might benefit from working with either a physical therapist or personal trainer (not that I can afford hefty co-pays! LOL), a skilled practitioner who has had some real-life experience working with clients with PN. I've worked with many a well-meaning physical therapist in past years who, while well-meaning, had had no experience with people with PN.

So, my goal is twofold: (1) to get some good answers to my questions, and (2) to assure my neurologist I regard us as a team of two in managing my PN.

I'll keep you posted on how this goes.

Cheers!

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Replies to "t the moment, I have such basic questions to ask my neurologist, such as: Is my..."

Welcome @james19113, It sounds like you may have a diagnosis similar to mine - idiopathic small fiber peripheral neuropathy. I went for a long time before seeking a diagnosis because I only had numbness which did progress some. I posted my story in another discussion here - https://connect.mayoclinic.org/comment/310341/. I think it's great that you are making a list of questions you would like to have answered so that you can talk with your neurologist. This site has some good tips and cards you can print out to take with you for your questions - The Patient Revolution - Tools for the Healthcare Visit: https://www.patientrevolution.org/tools.

Treatment depends a lot upon your neuropathy symptoms. Are you able to share a little more about your symptoms?