Do you know about the NTM Talk Podcast series?

I also enjoyed this podcast. I wish they had added more.

I suggest emailing them, and letting them know how much we miss them!

I was privileged to be a patient of Dr. Swenson's for 2 1/2 years. He was the second pulmonary doctor I used once being diagnosed with bronchiectasis, MAC and pseudomonas. The first one was not knowledgeable to properly treat me. I left him when he said, "I don't think I'm going to be able to help you." No referral, etc. so through this forum I found Dr. Swenson. He is amazing but his office was 3 1/2 hrs from my home so he referred me to a practice an hour away. Thanks to all who share what they know and learn about their individual illness, symptoms--what helps and what doesn't.

I too have MAC, bronchiectasis and pseudomonas in both lung and sinus. What treatments are you currently on? I would appreciate any knowledge you could pass on to me as I have not seen a lot from patients who have all 3 things. Thanks

I've had various treatments over the last four years. The first pulm doc did the Big 3 antibiotics for MAC but I did not tolerate them. He did not go with the right options because he did not know that there are options. He even said, "you have to take them like this or not at all." He was so wrong. Dr. Swenson said I probably should not have been put on the meds at all. He had me start nebulizing sod chloride twice a day, using a flutter device and inhaling Tobramycin twice a day as well as a PICC line for IV antibiotics for pseudomonas. None of that was for MAC. The nebbing was just to keep my lungs as clear as possible. All this worked for awhile but the pseudomonas kept coming back. Tobramycin continued off and on throughout the four years. A recent round of oral Cipro did a great job on the pseudomonas and my cough went to "nothing" VS coughing all day and part of the night. There is so much to learn but you're on the right site for that. Best of everything as you find your way.

Thanks @becleartoday for posting. Are transcripts available for these podcasts?

Hi there! I don’t know, but here are the slides:
https://www.nationaljewish.org/ntmslidesforpatients-1
Linda Esposito

Do you remember which IV antibiotic you were given for pseudomonas? Did Dr Swenson prefer the IV over the oral?

@irenea8 - CefTAZidime was the antibiotic given via IV PICC. I'm sure he felt that was the most effective course for treatment. I have problems with most antibiotics so when given through an IV they don't go through my gut.

Thank you. Me too on the gut issue, big time. Wonder if the Cefta helped for long? Or at all?