You're welcome. Yes, what gets me so down is that it feels impossible for it to get better, but not because it is impossible (it's not like we've lost a limb that we can't get back), but because we either can't access treatment or there aren't providers who can or are able to try to figure something out to improve quality of life. Being told by physicians or others that GI difficulties are "normal" for whatever condition (in this case EDS, but I have POTS) is so frustrating, because it feels like a collective "shrug"! Ok, yes it's common and associated with these conditions, but now what can be done to improve it? I'm not even looking for a cure, but some improvement so the symptoms are not as limiting.

I'm trying to do my best with what I have access to; thankfully I found a pelvic PT willing to attempt to treat this, and I have a GI-trained dietician who's comfortable with Intuitive Eating (as opposed to severely restricted diets)--there are just long waits for appointments, and we're really just guessing on the best thing to do, but I'm grateful they're willing to try. All the best to you, too.