My PCP initially found my MGUS late fall of 2022 and referred me to a hematologist. The first appointment was in January and the second in April with blood work for both appointments. The hematologist never went over any of the bloodwork results with me and when asked he said no worries you are very low level MGUS. The need to know and understand cannot be brushed off, it just causes more anxiety. So I got on Dr Google (there are some very good resources) and did a lot of careful research and in doing so found that the Mayo Clinic has developed a progression assessment based on their research into MM and precursor conditions. Anyway, turns out I’m at a high-intermediate risk of progression. Since following this group and the recommendations to others of finding a MM specialist, I called the Mayo Clinic in Jacksonville and they informed me they are not taking anyone with a MGUS diagnosis at this time. I discussed all of this with my PCP and I now have an appointment with a specialist at MD Anderson later this month. I’m hoping I get a much needed explanation and understanding of what’s going on and how this will affect me going forward. I am IgA Kappa with a very low M spike but a kappa / lambda free light chain ratio of 5.18.