Need hope: Neuropathy from chemo

Posted by needshope78 @needshope78, Apr 24, 2020

Is there anyone going through neuropathy from chemo. If so how long until my mother will be able to walk again afterwards. It’s been 8 weeks every week gets worse

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Kali Phosphoricum- Homeopathy remedy takes time for it to work and take it daily until symptoms improve.
Check out the link below
https://www.drhomeo.com/?s=neuropathy
My doctor asked me to wait until 6 months to see if my Neuropathy symptoms will go down before taking any Meds. I bought this homeopathic medicine two months ago and will start taking this tomorrow. I will share my results in a few months or earlier. Good news is Homeopathic medicines have no side effects.

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@cjay

I ordered from Amazon yesterday! Do you take it every day, or just when symptoms are present?

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I take it only when having symptoms. Hope it works for you! I was blown away at how fast it worked for me. The power of plants!!!!

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I am happy to mention three years post treatment that the neuropathy in my feet has improved so very much that I have been able to get off gabapentin. I hope that his helps someone feeling like things won’t get better, they actually can. I am glad that I did manage the pain so that I could continue walking throughout treatment. I do believe that walking, moving stretching are so important for recovery. Best to you all.

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@tommyray0427

It depends a lot on what chemo drugs are in her regimen. With my first round of FolFox 5F/U, they were giving me Dexamethasone steroids as part of the regimen. My neuropathy got so bad in my hands and feet I was almost debilitated. Turns out, the steroid can cause permanent to semi-permanent neuropathy. Some of what I'm going through will be lifelong and will never recover...I've lost all feeling in my fingertips and the soles of my feet have been on fire for nearly two years now.
I have since demanded all steroids be removed from my regimen...to the chagrin of my oncologist, but it hasn't gotten worse, and, in fact, the treatments are actually easier without the steroids.
You'll have to talk to your Doctor and/or care team to find out for sure, but there are definitely side effects that can be permanent...oncologists seem to not want to discuss these possibilities, or they choose to minimize the potentially permanent impact some of these side effects can have on a person.
My first year I worked with an oncologist that didn't seem to want to explain anything. I, finally, on the advice of a friend, got a second opinion, and now have an oncologist and care team that listens and is willing to adjust my meds as needed to reduce some of the more serious side effects. Do not be afraid to keep pushing your mom's oncologist to make adjustments to make her more comfortable...

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I’ve barely begun reading
all the comments/info about neuropathy and have to stop-. Why? Because it upsets me terribly to read about this! My husband was given a trial drug that totally cut him off at the knees. Neither onco’s ever questioned all his side effects! The most we were ever told is: We know neuropathy is a side effect. In the meantime my husband was left wondering what on earth was going on with him?! The SE’s were debilitating! He never complained… As I read, I can pin together the fact: the drugs gave him horrid neuropathy! To quote to husband, ‘‘Everything hurts.’ And yet NO help was offered. No suggestions were ever made!!! And now I learn there ARE things to help! There are some onco’s at Mayo Clinic who should be ashamed of their lack of care, questioning and help. Totally ashamed-. All I can say to this is: Thank you for those of you who share experiences and offer help. “Karma” will take care of the rest…

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I had such horrible neuropathy during chemo that I was not sleeping, recovering from my treatments. My team discussed it and changed the type of chemo which helped (thank goodness) during chemo.
I also took large doses of Gabapentin which helped a lot so I could sleep
Think having a talk with your mom’s oncologist might really help in trying some things that will also help her.
Best to both of you < 3

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@carlies

I’ve barely begun reading
all the comments/info about neuropathy and have to stop-. Why? Because it upsets me terribly to read about this! My husband was given a trial drug that totally cut him off at the knees. Neither onco’s ever questioned all his side effects! The most we were ever told is: We know neuropathy is a side effect. In the meantime my husband was left wondering what on earth was going on with him?! The SE’s were debilitating! He never complained… As I read, I can pin together the fact: the drugs gave him horrid neuropathy! To quote to husband, ‘‘Everything hurts.’ And yet NO help was offered. No suggestions were ever made!!! And now I learn there ARE things to help! There are some onco’s at Mayo Clinic who should be ashamed of their lack of care, questioning and help. Totally ashamed-. All I can say to this is: Thank you for those of you who share experiences and offer help. “Karma” will take care of the rest…

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I am sorry that you feel so bad. No one told me that chemo will cause neuropathy. I couldn't sleep, function. The doctors were very comfortable with giving me biger doses of gabapentin, but I don't like medicate myself. I do not understand why this detailed is not given and explaind to chemo patients. I think is scandalous. It would not stop me from having chemo, but it would prepared me for the consequences.

I hope you find some solutions soon.

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@kbnaz

I am happy to mention three years post treatment that the neuropathy in my feet has improved so very much that I have been able to get off gabapentin. I hope that his helps someone feeling like things won’t get better, they actually can. I am glad that I did manage the pain so that I could continue walking throughout treatment. I do believe that walking, moving stretching are so important for recovery. Best to you all.

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Can I ask how the Gabapentin helped? I have started Amitriptyline to help me sleep and hopefully help with some of the burning and redness on the soles of my feet, but haven’t tried Gabapentin yet. Did it help immediately?

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I used gabapentin for 2 years and it was quite helpful. It took a week or so to see improvement of titrating up. Best of luck to you!! Gaba, didn’t help me sleep as well -

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Gabapentin capsules help with symptoms of Neuropathy. This is a prescription. It can make you sleepy at first. But that goes away. Good Luck!

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I am sorry your Mother is suffering from this. I had endromedtrial cancer that metastisized to my pelvic bone. After radiation, I had 16 rounds of taxol and carboplatin. The third treatment my feet swelled and I could not put shoes on to get home. It has never gotten better. This was October 2019. They tingle and wake me up burning. I walk on a walker and do not feel confident walking with it. It is starting in my hands. I feel so trapped and sad. I also had my pelvic bone removed and replaced with a 3d prosthetic, which has left me in constant pain. I wish I had something positive to tell your Mom. My doctor's have not really tried much, just collateral damage. Please forgive me that I am no help.

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