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Caregivers need emotional support too

Caregivers | Last Active: Jun 16, 2023 | Replies (27)

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@talkativeinfl

I have been thinking about that for a while and broached the subject with my husband once giving him all the benefits of having hospice come in early so that we can establish a trusted group but he dug his heels in saying he was not about to have a stranger come to check on him even if it was only once a month until it was ABSOLUTELY NECESSARY. It has to be in his time and his decision as it has been for our whole marriage. I have to suggest things and let them drop so he can think about them and come up with the idea. I just FINALLY got him to decide he needed to look at the will, power of attorney and living will 3 month or so after we had them done online so that we can get them witnessed and notarized. Its got to be in his time for everything so I tend to believe him when he says I need to save my vacation time for his time. I told him he wasnt going anywhere this year and he said "yes I am love, yes I am".

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Replies to "I have been thinking about that for a while and broached the subject with my husband..."

Good morning, @talkativeinfl I'm not sure of the rules in your state, but here in mine, my wife needed a doctor's prescription to gain hospice services. It was a blessing for us to have him, her trusted doctor, be the one who told her it was time.

Just a thought from Indiana 🙂

Strength, Courage, & Peace

I'm glad you're here on this site. The things you're talking about are so incredibly familiar to me and to many (or all?) of us here. This is a good place to come to talk and want nothing from other people but their emotional support. You have mine if you want it.
On a practical side, when my mother was dying and wouldn't accept hospice, I finally had to tell her that I couldn't physically care for her alone any longer. She accepted that and hospice came in to help. Those people are wonderful.
I also understand how you don't want to tell your husband any of your feelings because of how it upsets him. I have the same thing with my husband who is losing his memory and his ability to manage small things like the checkbook, etc. We walk a fine line. Good luck, and I hope you get some rest.

Bless you and all you are managing with your dear husband. Cancer does Suck. We are in my husbands week 2 of HN cancer stage 2 chemo PEG and radiation.

I wanted to share that you could beg your husband or demand you have hospice and/or a caregiver come in twice a week. My mom was in terrible shape before she passed, and her husband ( who is NO care-giver but a pain in the neck-giver (using nice words) would not allow hospice or a caregiver to come into their home. I pushed and he begrudgingly relented but I he found it of high benefit --as he didn't want to help because it took away from his train computer games. --and they took care of my MOM when I couldn't be there. They loved her and nurtured her. So grateful . Hope you can get the help you need. It's not fair for you to have to manage everything and work full time.. it will be too stressful for you . Take care of you 🤍 too.