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Caregivers need emotional support too

Caregivers | Last Active: Jun 16, 2023 | Replies (27)

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@becsbuddy

@talkativeinfl You are so right! Caregivers need emotional support, too! Have any of your doctors mentioned it to you? There s usually a social worker in each office that you can make an appointment with. Also, ask the doctor to refer your husband to palliative care or hospice care. Hospice has doctors, educated nurses, aides, social workers who provide all the physical care for the patient and emotional support to the family. Hospice has a team approach. I experience hospice with both of my parents and was very pleased.
Do you thing something like this would be helpful for you?

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Replies to "@talkativeinfl You are so right! Caregivers need emotional support, too! Have any of your doctors mentioned..."

I have been thinking about that for a while and broached the subject with my husband once giving him all the benefits of having hospice come in early so that we can establish a trusted group but he dug his heels in saying he was not about to have a stranger come to check on him even if it was only once a month until it was ABSOLUTELY NECESSARY. It has to be in his time and his decision as it has been for our whole marriage. I have to suggest things and let them drop so he can think about them and come up with the idea. I just FINALLY got him to decide he needed to look at the will, power of attorney and living will 3 month or so after we had them done online so that we can get them witnessed and notarized. Its got to be in his time for everything so I tend to believe him when he says I need to save my vacation time for his time. I told him he wasnt going anywhere this year and he said "yes I am love, yes I am".

Our doctor never offered any help - no social worker, no information on how much my husbands meds would cost ($14,000 a month) and not even a word about getting a grant to cover the cost of the pills. He only said if you don’t take these pills & shot you’ll be dead in 6 months with bone cancer and it will be a horrible death! I’m so over trying to find help and information. We’re both tired and the side effects of the meds is overwhelming to him. I’ve contacted the drug company and all they are concerned with is that they need to report it to the FDA! My husband is 75 with stage 4 prostate cancer.