← Return to MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Discussion

MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Blood Cancers & Disorders | Last Active: Aug 3 1:59pm | Replies (203)
Comment receiving replies
@lclark918

Thank you Ginger, I’ve actually tried speaking with the nurse but she’s just as hurried as the doctor. I think I’m going to try to get a second opinion and maybe it’s like he says that if there was anything that was critical to my health he would make me aware but it seems like I’m feeling worse and no answers to my questions it’s totally frustrating. Sometimes I feel like saying can I just stay home and you file it on my insurance. It’s really sad as I have trusted this doctor for sometime with my health, he was attentive the first few appointments but now I feel dismissed and unheard. I’ve done some research today and do believe I’ve found another doctor that may be able to help me understand my test results. Reaching out tomorrow to see if he is taking new patients. I appreciate you responding, wish me luck maybe there will be answers for me in the near future.

Jump to this post

Replies to "Thank you Ginger, I’ve actually tried speaking with the nurse but she’s just as hurried as..."
2121 | @leslie2121 | Jun 7, 2023

I’m so sorry- you don’t need this additional frustration!
Hematology is very detailed & nuanced it seems- every time I go over my lab results I take away something new I hadn’t noticed.
I was diagnosed with MGUS in 2021 during a routine physical. I get lab work yearly now.
I think there’s a balance between giving us so much information we overwhelmed & anxious or just answer specific questions we ask and reassure us.
But things can be missed- no one cares as much as we do about our own health.
We do have to be our own advocates!

My initial BMB report was wrong- I was given a grim prognosis- I immediately got an appointment with UT Southwestern (Dallas) with a myeloma specialist- they looked at my slides and said the plasma level was 1-2% ( not 10%). I also had the slides sent to MD Anderson, and Honor Health in AZ to a specialist there. They all agreed MGUS.
So I had to search out online and work aggressively to get to the right people.
I wish you the best as you get clarity, and for peace & good health.

VIEW AND REPLY