Been searching for over 2 years, one hematologist oncologist has diagnosed PV. 1 test for jak-2 negative did not repeat, no biopsy despite AVN right hip now needing hip replacement due to pain and imminent collapse of femoral head, no know cause for AVN, diagnosed in 2014! I began having highly hemocrit, hemoglobin and red blood count in May 2022, kept wanting wait and see for 6 months, only suggestion baby asprin, no blood draws? Started with sweating 4 years, night sweats, swollen lymph nodes, fatigue, double vision, rashes red dots, blisters on skin and toes, now itching is maddening! Numerous blood tests, CT SCANS of brain, neck, pelvis and chest still no diagnosis but possible cancer? Appointment on June 12 with new hematology/oncology by primary with request for bloodwork and a PET scan. Possible lung cancer, blood or bone marrow cancer and so many doctors and specialists getting gaslighting only! I’m just about done with western medicine! Still losing 2-3 lbs weekly despite eating healthy and need help! Thanks and good luck guys! This is ridiculous trying to get answers!