I have read your above posts in an attempt to find help for my husband who has relentless itching and bumps with open sores on his lower body that is starting to spread higher. He has tried similar ways to soothe himself except for the Triamcinlone. He uses Bethamethasone which was prescribed by an allergist after his dermatologist offered no help.
His iron and ferritin is normal so we assume he does not have hemochromatosis but he is now consulting with a hematologist oncologist pending the doctor's diagnosis and a genetic blood test. The consult was prompted by blood tests indicating low platelets, red blood cells, hemoglobin, hematocrit, eosinophils and high RDW SD.
The hema/onc doctor does not offer any help for the itching and does not connect the itching with his blood problems. The dermatologist and allergist have labelled his skin problem as eczema and have not offered much help with the itching and do not connect his blood problems to the skin. None of these doctors consult together (which is not surprising but certainly concerning to me).
My husband is a very active healthy 80 year old and he only escapes the itching if he becomes totally absorbed in mental or physical activities during the day and he does well with this. However, after 5pm, his awareness of these terrible itches start and he is having a hard time sleeping.
He is very disciplined in seeking ways to help minimize his discomfort but it appears he is getting worse. This past weekend, he noticed that if anything rubs against him (like his water bottle or backpack), the bumps come out and itches start. All seating is now covered with clean cotton sheets to minimize abrasions and he is going through his clothes to wear only baggy natural fibers.
I'll check back to this link to see if there are additional suggestions in the future of reducing the sores and itching. We are very concerned that the bumps that are opening and becoming sore will become open to infection. Gasp! I wish you all better days.