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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)
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@janetlee23

Hi. My name is Jan and I have peripheral neuropathy in my feet. It seems to have been getting worse until just recently when my doctor ordered some blood tests and I found out that I am very high in vitamin B6. I have been taking B6 off and on for a few years but a week ago I stopped. It seems like my neuropathy is slightly better but I'm not sure if it's only in my mind. B6 has been shown to cause naturopathy if you have toxic levels in your blood. Has anyone else had any experience with this being true? Also, some people have neuropathy symptoms just from taking any B6 supplement. Not to worry about B6 you get naturally in foods.

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Replies to "Hi. My name is Jan and I have peripheral neuropathy in my feet. It seems to..."
John, Volunteer Mentor | @johnbishop | Jun 4, 2023

Hi Jan @janetlee23, Welcome to Connect. Sorry to hear that you have joined the PN club. You are not alone, there are a lot of us with varying degrees of peripheral neuropathy and other varieties and conditions. I shared my story in another discussion here – https://connect.mayoclinic.org/comment/310341/. There are a couple of other discussions on vitamin B6 that you might want to view.
— Body making too much Vitamin B6: https://connect.mayoclinic.org/discussion/body-making-too-much-vitamin-b6/
— B-6 vitamin danger!: https://connect.mayoclinic.org/discussion/b-6-vitamin-danger/

Do you have pain with your neuropathy in your feet or just numbness and some tingling?

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cher27 | @cher27 | Jun 5, 2023

SAME! When my neurologist saw my labs, he was shocked at the high level of B6 & told me to stop taking B supplements, except for B12. I did. Unfortunately, the damage was probably already done.

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