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@jprust

My sister went through what you are going through. Only her husband only had one treatment and refused to have anymore. He had oropharyngeal cancer. She could only get some home health-he couldn’t get into hospice until a week before he died. She is probably 95 pounds soaking wet and has a failing neck surgery so she couldn’t do much. Everyone gave her all the advice that is on here, but nothing worked. He even fell in the bathroom when the home health nurse was there. The nurse wouldn’t help my sister get him off the floor until my sister threatened to call the administrator of the program.
You are not a bad caregiver. The situation is bad, not you.
The only thing I can think of is to tell them you will not be home-take your pets and check in to a motel. Or if he goes home, every time you can’t get him up call 911 and get EMT help. Or talk to the administrator and request different physicians. It is horrible. You may have legal rights to keep refusing to take him home. Maybe an attorney can help with the hospital too.

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Replies to "My sister went through what you are going through. Only her husband only had one treatment..."

An attorney who specializes in Medicare and eldercare issues.

On our benefits plan, we pay 20% for the cost of an ambulance - which was $100 plus dollars last time we were charged,