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Thought I was over, but I'm back with PostCovid

Posted by lolaemma @lolaemma, May 10, 2023

I thought that I was over all the leftovers. Now is it possible that it didn't leave me? Fatigue is dragging me down just as breathing heavy is taking hold. I thought I was just depressed about personal matters but falling asleep everyday as well as 8-9 hrs seems excessive. My asthma was in control until January when I tried to decide if my fatigue was asthma, fatigue or depression or wait could it be age? My new Dr is recently back from an eight month maternity leave and doesn't seem engaged.
I have asked another Dr to take me on. I just slump through the days.
I have started to make small do lists and follow through before starting another. I'm kind of tired just putting this together and practicing deep breathing. Is it long haul for life?

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gford | @gford | Jun 3, 2023

I had Covid 1/2022. Symptoms started 2 weeks later and long Covid stayed with me until august. Late November got pneumonia and it all came back. Been to pulmonary, neurologist, ENT, and thoracic. Just started a pulmonary therapy program designed for post Covid patients. Too early to tell if it’s working. Point is you think it is gone but I think anything can act as a catalyst to bring it back.

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britelite | @britelite | Jun 3, 2023
In reply to @frouke "I think this question has come up before…I’m due for a booster shot, it’s been six..." + (show)
@frouke

I think this question has come up before…I’m due for a booster shot, it’s been six months since I had covid and I too am dealing with ongoing problems…my concern is that will the booster make my symptoms worse.. I can’t get much info on this subject. I’m high risk for covid and I took Paxlovid to help me but as much as it helped I did have a rebound from it. I would like to hear from anyone that had to make this decision about getting a vaccine after long covid

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Just a short history before I answer your booster query. I’ve been battling long covid since Feb. 2023. I was an active 78 year old female - swimming, walking and traveling internationally. I only had a mild cough and took Paxlovid. Had a couple of weeks feeling ok. Then started having shortness of breath on exertion which progressed to constantly being short of breath coupled with slow, irregular heart beat. Also had a hypertensive crisis while on a course of steroids. EKG and 24 hour Holter monitor in March and April were inconclusive. In May, felt so lousy, went to the ER and diagnosed with complete heart block and had to have a pacemaker implanted. I’m slowly getting better if COVID doesn’t rear it’s ugly head again. My primary suggested getting a bivalent booster and I was really conflicted and scared to do it. If you Google “booster with long covid” you’ll find a couple of studies that show boosters may help long covid. The studies were small but it showed most participants improved but there were some that got worse and some stayed the same. I decided to get the booster 4 days ago. It’s probably too soon to tell but I haven’t gotten worse. I just had my pacemaker adjusted yesterday so today I’m feeling pretty good. I had underlying asthma which was well controlled but think covid reactivated it so I’m still dealing with that. So, I’m just saying getting the booster was ok for me. Covid is sinister so hard to say how the booster will affect each individual. I’ll keep you posted if there are any dramatic changes. Good luck!

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joansmurphy | @joansmurphy | Jun 4, 2023
In reply to @gford "I had Covid 1/2022. Symptoms started 2 weeks later and long Covid stayed with me until..." + (show)
@gford

I had Covid 1/2022. Symptoms started 2 weeks later and long Covid stayed with me until august. Late November got pneumonia and it all came back. Been to pulmonary, neurologist, ENT, and thoracic. Just started a pulmonary therapy program designed for post Covid patients. Too early to tell if it’s working. Point is you think it is gone but I think anything can act as a catalyst to bring it back.

Jump to this post

Unfortunately I agree. I had 2 respiratory illnesses precovid that turned into a year long struggle (2011 & 2019) and now long Covid since getting Covid in Nov. of ‘21. The rheumatologist believes it to be some sort of autoimmune response.

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