← Return to MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

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@amossarah

Hi Robin,
Yes I am exactly like you! I have no symptoms. Slight back ache, which goes with exercise. My liver and kidney function are also perfect. The reason I got tested is because we found out just before Mum died this February at 83, she had multiple MM.
I am two weeks in. Very scared, struggling to sleep and having full on panic attacks!!! I am waiting to see the haematologist- 3 weeks to go! They have suggested it could be smouldering myeloma. I’m being told from the few friends and family I have told to keep positive as it might only be MGUS. I feel like screaming is that all!! I’ve just watched my mother die and now realise why she had all these complications!!! But I suppose though 83 isn’t a bad age!
it is really good that Your haematologist says not to worry. I know that’s not much, but it is a little bit of hope. Keep doing what you’re doing if you’re healthy in every other way.
Sending a huge hug X

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Replies to "Hi Robin, Yes I am exactly like you! I have no symptoms. Slight back ache, which..."

They ALWAYS say don't worry because it's NOT THEM!!! He also hadn't seen my follow-up bloodwork. I live my life with my glass half full all the time. 20 years ago I was dx with stage III colon cancer and I knew I would beat that, I DID. This just came out of nowhere, no connection! I'm just so disappointed and angry. It's like lightening striking twice but for no good reason. Anyway, thanks for your very kind words. I can tell you this much, staying positive and prayer are very important. God does listen ❤️