← Return to MGUS: Please, let me know I not alone

Discussion

MGUS: Please, let me know I not alone

Blood Cancers & Disorders | Last Active: Jun 3, 2023 | Replies (144)

Comment receiving replies
@gingerw

@katytx Welcome to Mayo Clinic Connect. The story you related has many of us nodding in agreement, as we have gone through very similar times!

Was your doctor looking and testing you for something else when your MGUS was found?
Ginger

Jump to this post


Replies to "@katytx Welcome to Mayo Clinic Connect. The story you related has many of us nodding in..."

My gastro doctor was looking to see why I was having abdominal pain and referred me for a CT Scan which indicated splenomegaly---enlarged spleen. They referred me to my Hematologist/Oncologist to understand why the spleen was enlarged. She initially thought Myelofibrosis but the test results did not point to that, but that's when she concluded MGUS. I have learned that my spleen reacts when I eat too much or have too much liquid like soup, as I feel full and pain radiates to my left shoulder. So, doing my best to avoid those items right now. Had an Upper GI procedure as well after all the testing with my Hematologist/Oncologist and nothing found.
Everything felt so random,
and if I had not had that pain, I would not know about the MGUS. So, I tell my friends and family, don't ignore symptoms---check them out!