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PV and fatigue

Blood Cancers & Disorders | Last Active: Jul 14, 2023 | Replies (92)

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@casevin7

I feel for you. I also have shortness of breath especially at night when I go to bed. And if I have to get up, it takes a while to regain my breath on returning to bed. I was prescribed an inhaler but had a reaction to it. I started walking the neighborhood again and that has helped ever so slightly. But talking on the phone is painful trying to breathe and talk. Last time I had this issue my gall bladder was about the explode and was pushing against my diaphragm. I suspect my spleen is enlarging, but doc doesn't agree.
Good luck to you

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Replies to "I feel for you. I also have shortness of breath especially at night when I go..."

Thank you for that reply. I have a lot of trouble at night as well, I don’t breathe well laying down for bed and will get worked up. I do have an inhaler as well and I use it, but I don’t want to use it as often as I do. I suppose I do need to be more active to maybe build my lungs up a bit, covid had a go at them as well. I find that talking to friends especially when I am into the conversation, it is so frustrating and painful to have to stop and catch my breath like I was just running instead of chatting. I’d like to look into the enlargements of organs myself as I’ve read about PV and that. I hope this finds you healthy.