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Polycythemia Vera (PV) and fatigue: What helps?
Blood Cancers & Disorders | Last Active: Jul 7 9:37am | Replies (99)Comment receiving replies
Yes shortness of breath comes and goes. I still walk 9 holes of golf and stop when I need to. I feel much better when I keep active and listen to my body. I hope you can find what works for you.
Replies to "Yes shortness of breath comes and goes. I still walk 9 holes of golf and stop..."
Make sure you start taking a blood thinner this is know joke. I have had pv for 6 years and almost died 4 years ago because I developed a blood clot in between my heart and lungs
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I think it can be simplified down to just resting when you should and stopping for a bit. That is a great point. I’m glad you can walk the 9 holes, I’m a cart rider myself! I need to give myself the grace to stop and regroup and move forward.