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Hi, I was diagnosed last week and am awaiting my hematologist/oncologist appt. But, one of my biggest everyday symptoms besides the fatigue is shortness of breath. I do use an inhaler now and my doctor thinks I may have developed asthma as well, but I wonder if it is just a rough side effect of my PV now that I have the diagnosis. I get very frustrated with it as well. Talking and walking and even rolling over in bed can make me out of breath. Being 25 and otherwise healthy, it is a very odd thing to be so out of breath.
Replies to "Hi, I was diagnosed last week and am awaiting my hematologist/oncologist appt. But, one of my..."
I feel for you. I also have shortness of breath especially at night when I go to bed. And if I have to get up, it takes a while to regain my breath on returning to bed. I was prescribed an inhaler but had a reaction to it. I started walking the neighborhood again and that has helped ever so slightly. But talking on the phone is painful trying to breathe and talk. Last time I had this issue my gall bladder was about the explode and was pushing against my diaphragm. I suspect my spleen is enlarging, but doc doesn't agree.
Good luck to you
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Yes shortness of breath comes and goes. I still walk 9 holes of golf and stop when I need to. I feel much better when I keep active and listen to my body. I hope you can find what works for you.