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Anyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: 1 day ago | Replies (808)Comment receiving replies
Oh my GOSH! @kelliw! What a frustrating time you've had. And it doesn't help that you were already anxious about the new lower dose. I'm stunned, but not surprised by the treatment you and your doctor received. It's Friday. The weekend is coming. Are you hooked up now with the correct dose and have the pills in your possession?
Replies to "Oh my GOSH! @kelliw! What a frustrating time you've had. And it doesn't help that you..."
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Thank you! I just got off of another 50 minute phone call trying to sort all of this out. My doctor finally updated the REMS portal this morning, so after being put through to 4 different people, my new lower 2.5mg dose is being shipped today, to arrive tomorrow, so I won't miss a day. Thank goodness! Thank you for your words of encouragement! This has been pretty stressful-trying to teach my children and keep them busy while dealing with all of this! Very time consuming. I guess I should be grateful though that there are strict protocols in place to keep me/all of us safe. I try to be a positive person most of the time! 🙂