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Trouble eating with HCM

Hypertrophic Cardiomyopathy (HCM) | Last Active: Jul 24 1:40am | Replies (39)

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@captainterry

We have followed the REM protocol through this point on Camzyos. Currently seeing DR. from 4 to 8 months between visits. Echocardiograms every 3 months. I also have an ICD installed before Camzyos, so I am constantly monitored. The ICD has never made a pacemaker adjustment or given me a shock. Thankfully.

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Replies to "We have followed the REM protocol through this point on Camzyos. Currently seeing DR. from 4..."

I'm happy to hear it's gone so smoothly for you. There are some fellow Camzyos folks who are having a bumpy ride with regulations, insurance issues and side effects. And super good to know your ICD has never fired off! I've heard it's terrible! Has the Camzyos given you back your life?