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Wait time for lung transplant at Mayo Jax.

Transplants | Last Active: Jun 3, 2023 | Replies (10)

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@chickytina

It really depends on what your rank is. The system goes up to 100. When I was originally listed, my number was 48 (average to be listed is usually 35-50). I was given an expected wait time of 3-6 months. However, I got worse and was reevaluated as 75. At that time I was on 30 liters of oxygen and they were just trying to get me in shape to be able to sit up. I luckily was able to get a new set of lungs about a week later. I know most people are on much longer. I wish you luck. However, as many have said try to be as active as possible as long as possible. Even if you have to take breaks that is ok.

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Thank-you for your reply, I know this disease progresses as it wants to. How long between diagnosis and Transplant. Just wondering. I’m just over 2 years after being diagnosed.