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← Return to Inactivity with pulmonary fibrosis
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Inactivity with pulmonary fibrosis
Lung Health | Last Active: Jun 11, 2023 | Replies (20)Comment receiving replies
My husband was on OFEV last year. We were so happy after the ins approved and got open doors assistance. Unfortunately it affected his liver and caused low platelets. He passed from the complications. If you do use any of these drugs order liver function test for every month. Don’t wait for the 3-4 months interval
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Thank you for your suggestions and I am so sorry you lost your husband. Open Doors has been helpful with information but we did not qualify for assistance.
Just started Ofev 4 weeks ago. He has RX for blood work in two weeks. Then another one like a month after, so our pulmonologist seems to be on it.
Hoping because he does not consume any alcohol, that will be helpful, but that might not have anything to do with how the liver reacts to the medication. He never smoked, either, or worked somewhere that had obvious causes for IPF, and he still got it. So who knows. We are still trying to adjust to this whole thing…
So wonderful to have this site for support…thank you again, and my prayers for you